Happy Thanksgiving everyone!
We have SO MUCH to be thankful for this year!
We are so blessed.
On Thursday, my friend Chelsey and I loaded the kids up and took off for Kentucky and Jovia’s first visit with the orthopedic specialists at Shriners Hospital. The kids did great on the ride down. Thankfully we have a DVD player in the car and that kept everyone occupied for much of the 5+ hour drive. We got to Kentucky that evening and spent the night in a hotel near the hospital. Friday morning we all headed over for her evaluations.
The goal of the appointment was for us to find out exactly what we should be doing for Jovia at this point and what our “next steps” are for her. She was evaluated by orthopedic specialists, had x-rays taken and saw physical and occupational therapists. We had anticipated also seeing the prosthetic clinic but that didn’t happen. The orthopedic specialist advised us that prosthetics aren’t going to be much help for our little Jovia. They said definitely no for legs as she has very little bone in her leg stumps. They also said it was unlikely she’ll ever be able to stand/sit on her own as it would be like balancing on jello. :/ They said it may be possible for her to consider arm prosthetics “someday” but they said not right now, as they would be more of a hindrance than a help to her at this point. Not what we expected but at least we have some idea of what to expect and we could move on. I asked them what our next steps were for making sure Jovie had as much independence as we could give her and they said we start looking at adaptive equipment and a wheelchair. So off we went with occupational therapy.
The occupational therapist we saw was just great. She made Jovia an arm cuff right then and there so that she can start learning to feed herself and can color/draw with a crayon or marker. Jovie is going to LOVE that. We talked about other equipment that we’ll start looking at as Jovia gets bigger to make it easier for her to do things on her own and easier for us to care for her. Our biggest adventure right now is going to be Jovie’s new wheelchair!
Jovia is going to soon be the new owner of her very own, hot pink electric wheelchair! A Permobil K450 MX for anyone wondering.
OK – maybe not so soon, we’re told ordering can take anywhere from 4-6 months to complete but we’ve started the process and are so excited for her! Jovia had the opportunity to try out a chair while we were there and it was soooo cute to see her in it. It will take some practice for her to learn to maneuver but we’re told that this is the perfect age to start learning. She seems excited about it too. They had to strap her into the wheelchair with a gate belt because this one didn’t have a shoulder harness and she wasn’t crazy about that, but really seemed to like being able to move the chair and we’re so excited to see how quickly she learns how to use it and to see her get around on her own!
We are so proud of and excited for our sweet girl!
Jovia is one of the most extroverted and dramatic baby girls I’ve ever met. Can you tell?
This girl has some singing skills.
Unlike her completely off key can-not-carry-a-tune mother. Sorry you all have to listen to that.
Every once in a while I post about waiting children that I find have large grants and are in need of adoptive families. I know that often money is the only thing that keeps families from adopting. Please take a few minutes to look at these precious children and consider whether you, or someone you know, could be their forever family. I have listed their name and the amount of their adoption grant as of 11/10/11.
Little ones with Downs Syndrome:
Other Special Needs:
In addition to the kiddos above, all listed on Reece’s Rainbow, AAI has a 10 year old HIV+ boy in Africa who has had another family offer to pay for ALL of his adoption fees. I am the contact person for him so message me if you want more information on his situation.
WACAP also has large grants available on some of their waiting children. The grants range from $2,000 – $9,500 depending on the need and what country the child is in.
Hoping to hear that
some all of these kids have families SOON!
Do you know of any other waiting children with large grants towards their adoption?
Let me know so I can add them to this or future blog posts!
Mayer has been taking tennis lessons. Not his daddy’s first choice for a sport but there are few organized sports for 3 year olds around here and by golly, he loves it!
So, there’s this baby I can’t get off my mind or heart.
And no, we are not adopting again anytime soon…she isn’t supposed to be ours but I just KNOW her family is out there looking for her.
This sweet, precious baby girl has limb differences of all four limbs like our little Jovia. I know that this special need can be scary. Being honest, our first thought when we heard about our little one was “no way can we handle that.” But God knew otherwise. And I thank him every day that He led us to this amazing little girl. Her lack of limbs is so often the last thing we think about. She can do SO MUCH. She is happy, loving and so funny. People fall in love with her wherever she goes. I know that whoever says “yes” to this waiting princess is going to be just as amazed by her. Just like Jovia, I’m sure her abilities will outshine her disabilities and everyone will be in awe of what she can do.
I would love to talk to anyone who is considering inquiring about this special baby and wants to talk more about this special need.
“The greater the struggle…the more glorious the triumph.”
I have got to start pulling out a real camera at least once a week.
These poor kids will grow up and all we’ll have is cell phone pictures of them for months on end.
So, notice the boys are all blurry? That is because they never stop moving. Seriously. Never. And well, it’s a camera phone. Wiggly boys + camera phones = blurry pictures.
But are they cute or what?