Benja Update

Benjamin saw his neurologist for the first time a few weeks ago.  It was a much anticipated appointment and we’ve been anxiously waiting to hear what the doctor had to say.

He started with general questions about Benja and reviewing his medical history.   He was very familiar with Uganda, having spent time there apparently, and very interested in Ben’s story.  He did some tests which he told me were to look for signs of brain damage.  Thankfully he said he saw no outward signs of damage.  He examined Benja’s head and told us that his while his sutures are completely closed he didn’t seen any current signs of craniosynostosis that would require surgery.   He has ordered some scans of his head to look for abnormalities of the brain.  We hope to have those done soon.   He said our concern at this point is whether or not his brain is growing.  He has fairly significant microcephaly, which we’ve known for a while.   If his head has indeed stopped growing there is really nothing we can do.  He may always be delayed but just because a person has a small brain doesn’t mean they aren’t smart or aren’t able to continue to develop.
On the other hand, if his brain is still growing we watch for signs that his brain is outgrowing his head, in that case it might require surgery.  He pointed out that a small brain isn’t the end of the world and since he has already made such big improvements we have no reason to believe he won’t continue to improve developmentally.   The doctor wasn’t at all willing to talk about what the future might hold for sweet Benja but said all we can do is wait and watch (and pray!).

We also recently had an appointment for Benja to be evaluated by a urologist.   The last several checkups he’s had they had been unable to find his testicles and we were looking at possible surgery for undescended testicles.  The last thing we wanted was to end up with another surgery!   We are so excited that the urologist was able to locate one testicle yesterday!  That means no immediate concerns!  He has another urological issue that will need to be addressed at some point but they think it is something they will be able to do while he is already scheduled for another procedure and won’t mean an additional surgery.   Happy news.  :)

So that’s a small update on where we are with his medical stuff.
He’s doing great and we’re so in love with our baby boy!

 

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5 Comments to “Benja Update”

  1. I love this pic….those are probably the most gorgeous eyes I have ever, ever, ever seen! Sounds like you have a great doctor…Praying for a good, long, healthy life for Benja!

  2. such a sweetie! thanks for the update!

  3. You are all so blessed to have each other. I love seeing God’s story unfold in his life. Much love to your family!

  4. Love. this. kid!
    Seriously, one of the cutest kids ever….and he sure sounds like a fighter like our G-Man.
    Blessings to you all!

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